About Genetic Alliance...
Genetic Alliance, a health advocacy nonprofit, manages and operates the Platform for Engaging Everyone Responsibly (PEER). Our mission, which is much broader than our historical genetics mission, specifically includes creating ways for individuals, families, and communities to transform health. PEER is one of the ways we do this. Our work is overseen by a Council and an Ethics Team. PEER is subject to annual IRB approval, as is every project using the platform. For more information, please visit our website.
Private Access has pioneered a consumer-centric platform that makes it safe for individuals to allow their confidential information such as personal medical records to be accessible over the Internet. We accomplish this through award-winning technology that extends the current capabilities of Internet-based search engines to include the ability for properly authenticated persons such as doctors, family members, researchers and others to search for highly confidential or sensitive personal information based on "private access" rights that each individual can create to control who can, and cannot, see all or selected parts of his or her personal information.
Our people and our technology are dedicated to empowering individuals to improve the care they receive, accelerate the discovery of new treatments for diseases and chronic illnesses that affect them or others they care about, and reduce health care costs for their families and the nation. And while we've demonstrated our technology using the exceptionally demanding medical research context where a patient's express permission is required to release highly granular data and personal contact information, the applicability of the underlying platform we've developed extends well beyond this focus.
As electronic records repositories proliferate, and new requirements regarding the use of personal information are considered by Congress and various regulatory bodies, the need for better privacy controls and data management becomes more acute every day. All stakeholders need a way to promptly and efficiently respond to properly-authorized requests for data access, and simultaneously to assure that federal and state privacy laws are fulfilled, that detailed institutional rules and policies are applied, and where applicable, that individual privacy preferences are followed.
Our system enables all of this, and much more.
For more information about Private Access, contact Kari Taylor at (949) 502-7890, or complete and submit an interest form and someone from Genetic Alliance or Private Access will follow-up with you.