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Find your community...

Below is a list of existing PEER Community sites as well as new PEER Communities that are now in active development. Where communities are presently open, a link is provided to the Live registry; and if you or a family member are affected by one of these conditions, we encourage you to visit that page.

At a White House PMI event on July 8, 2015, PEER announced that it had added the capability for individuals to directly upload data from their Electronic Health Record systems into PEER from either the individual's PHR or through a secure email message from their provider to PEER. This new feature is being included as an integral part of all new releases and we will begin to upgrade existing PEER Communities beginning in several weeks.

As a service to all of these communities, PEER is providing a generic upload capability that may be used by any existing or newly-registering participant, and once the PEER Community site incorporates the enhanced functionality, any records that have been uploaded by participants will automatically be transferred. Individual participants who are not participating through a PEER Community registry also have the option to complete an initial survey once they have uploaded their EHR data.


Mitochondrial Disease Community Registry
Our Disease. Your Information. The Community's best hope for treatments and cures!

Upload Your Records


Pseudoxanthoma Elasticum (PXE) Registry
We do not understand how PXE progresses, or how to slow it down. It is time to change that! Please join our effort to complete the puzzle!

Upload Your Records


Joubert Syndrome Link to Information & Family Exchange (JSLIFE)®
Together we can advance research and improve care.

Upload Your Records


Alstrom Research Connect - ARC
Help spark innovation for all!

Upload Your Records


Dyskeratosis Congenita Outreach
May you never be alone.

Upload Your Records


Hepatitis Patient Registry Network (HepPRN)
Together we can accelerate our quest to save lives and reduce or eliminate hepatitis

Upload Your Records


Gastroparesis Patient Association for Cures and Treatments (G-PACT) Registry
You have a unique opportunity to communicate with researchers.

Upload Your Records


NGF Gaucher Network Registry
The information we provide can be a vital force in helping to advance research.

Upload Your Records


Free The Data
Genetic information is more valuable when shared

Upload Your Records


Coalition for Pulmonary Fibrosis (CPF)
Join us in stopping Pulmonary Fibrosis!

Upload Your Records


Inflammatory Breast Cancer Research Foundation Registry
Committed to finding the cause! Focusing on research and awareness.

Upload Your Records

* Opening this summer: PEER will hold your records until this Community launches.


MLD Foundation
We C.A.R.E.

Upload Your Records

* Opening this summer: PEER will hold your records until this Community launches.


Celiac Disease Foundation
Celiac Disease Foundation drives diagnosis and treatment of celiac disease.

Upload Your Records

* Opening this summer: PEER will hold your records until this Community launches.


AXYS
Association for x and y chromosome variations

Upload Your Records

* Opening this summer: PEER will hold your records until this Community launches.

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